Patient Registry
Build a comprehensive patient registry
Build a comprehensive, next-gen patient registry and gain access to millions dedicated to advancing medicine through health data sharing.
Human API is a patient engagement platform that connects and converts health data from multiple sources — transforming data into intelligence.
Streamline patient engagement and acquire health data — from any source, at any time.
360° view
Aggregate patient-consented health data from any source for a 360-degree view of each participant, including a longitudinal record of health history over time.
Patients as partners
Foster mutually beneficial patient relationships that deliver insights for personalized support, services, and opportunities throughout the patient care journey — helping you promote positive outcomes.
Valuable data asset
Create and leverage a multi-purpose data asset across R&D and post-market teams. Tokenize and de-identify data to combine with existing datasets.
Access to health data outside a controlled clinical trial is limited, despite how valuable the data is that’s collected during routine clinical care.
The health data ecosystem in the US is siloed, unstandardized, and largely inaccessible to researchers. These challenges are partially remedied through de-identified data, but that data is often limited to specific EMRs, costly to obtain, and stripped of valuable information. There’s also no way to tie the data back to a specific patient.
Next-gen patient registries put patients in the driver’s seat, enabling participants to share health data in exchange for direct, personalized outreach from life sciences organizations, focused on advancing medicine for all.
How it works
1.lInvite people to join the registry
Source from any patient touch point (e.g., clinical trial recruitment, physician relationship, patient services programs) to invite to the registry. Human API’s patient onboarding workflow will walk them through the simple consent and data collection process.
2. Gather data directly from participants
Ask participants to share their health data. Send out surveys, questionnaires, ePROs, and more to collect supplemental information. Participants have an opportunity to create their own My Human API account, to view and share their health data and manage authorizations over time.
3. Explore the registry and identify new opportunities to engage
Study teams and researchers can explore population-level statistics about the registry (e.g., demographics, conditions, procedures, etc). Define and create cohorts of participants for specific outreach, like recruiting for a clinical trial or participation in a patient support program.
Other Use Cases
Clinical Trial Recruiting
Identify eligible, motivated participants and reach out to them directly for clinical trial opportunities.
Patient Services
Perform timely, personalized outreach for support programs and digital companion applications.
